LIVING WITH LUPUS.

lupus butterfly

Life as a Lupus Warrior. 

Living with Lupus hasn’t been easy. Living with Lupus has been and will continue to be physically and mentally draining.

When I was diagnosed back in Summer ’14, I had to make a lot of changes to my life and prioritize everything that I did (also known as the spoon theory). I stopped going out and socializing, I was unable to walk with pain and locking of my joints, I was constantly tired no matter how much I slept, I had constant migraines that didn’t allow me to leave my bed, I had to cover up in the summer to stop flares happening and I had to give up things that I loved like cheerleading.

And there was absolutely nothing I could do about it apart from taking heaps of medication that seemed like it wasn’t working.

Lupus is an invisible illness and I often get comments from people like “you don’t look ill“, “there’s nothing wrong with you” or “its all in your head” unfortunately this is not the case.

After my diagnoses for a person with a bubbly and happy personality, I was unhappy and sad. I was unhappy for a long time.

In November 2015, I decided that I wanted to raise money and awareness for LUPUS UK, I ran the Big Fun Run 5K UK with a longtime friend and together we raised over £200!

This is the link to my JustGiving page if you would like to donate to a cause that means an awful lot to me

I have to admit it has taken a long time to adjust to the changes and feel slightly normal again – but I doubt that I will ever go back completely normal.

It is possible to live a relatively normal life with Lupus and I have proved that to myself with a few hiccups along the way.

After my graduation (20/11/15) I decided that I will not let my illness control my life anymore.

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I am strong. Lupus may set me back but I will climb every obstacle and hurdle in my way. 

I AM A LUPUS WARRIOR ❤

Tsharna Ama Katsina


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