I received this #sparespoon from a lovely woman on instagram who makes and decorates wooden spoons to send to people all over the world with chronic illnesses – @rachelsuperted – this spoon reminds me that there are people all around the world suffering like me. ❤
The spoon theory (mentioned in my previous post ‘living with lupus’) is a way of life that people with chronic illnesses live by and an easier way to explain to people who don’t understand why we can’t do something or attend an event.
right, so here goes…
lets say I have 20 spoons in a day.
A spoon represents physical and emotional energy.
Each time I carry out an activity – even a simple task – I loose spoons, but the more energy the task takes to do looses more spoons.
So I wake up in the morning and get out of bed, shower and get ready… there goes 5 spoons and its only the start of the day.
Its now 8.30AM and I only have 15 spoons left until bedtime.
Travelling to work, eating lunch and all the tasks in between until 6:30PM has taken 8 spoons.
leaving me with 7 spoons to get home, cook and eat dinner, get ready for bed, and chores that need to be done, and to spend time socializing with my family.
Using the spoon theory helps people to understand that living with an illness means you have to prioritize what you decide to do. work out whats important and what can be done another day.
most of the time I’m too tired and in too much pain to do anything.
So when I say I’m not coming, its not because I don’t want too, its because I actually can’t. I am all out of spoons for the day.